Annual HSP Survey 2022

All with HSP invited to take the survey

The 10th annual global survey of people with HSP by Adam Lawrence, Chair of the UK HSP Support Group, is now available.

Adam Lawrence

The focus for this year’s survey is: 

  • Mobility
  • Pain
  • Disclosure
  • Life with HSP
  • Menstrual health

The survey will be available until around the end of December with results published on Rare Disease Day at the end of February next year.

Use this link to answer survey questions in English: 

https://forms.gle/u3PfSNHUZzGGvBpU6

Or from here for Dutch, Italian, French, Spanish, German and Portuguese. 

SOURCE: 2022 Survey Open

Adam Lawrence

Give to help fund HSP research

Support the Foundation’s ongoing efforts to fund research to find an effective treatment for HSP.

Gifts of $2 or more are tax-deductible. You will be emailed a receipt.

We welcome new members to the HSP community!

Share our page: