Newly diagnosed with HSP?

What you wished you knew

Many people with HSP report that amongst all the natural stress, fear, anxiety and uncertainty that goes hand-in-hand with a diagnosis of HSP, having reliable and readily accessible information to answer the thousand questions you have would have been really helpful.

We plan to develop a section of the website to provide such information for people newly diagnosed with HSP and we need your help to do that, especially if you did not have such support when newly diagnosed yourself.

Please email us your thoughts or add them in the Comments box at the bottom of the page. Here are three questions as a prompt:

  1. What questions did you have when you were newly diagnosed? 
  2. What information would you have liked to have access to?
  3. What else would have been really helpful?

Thank you for your support in providing this information that will help others in the future.

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Support the Foundation’s ongoing efforts to fund research to find an effective treatment for HSP.

Gifts of $2 or more are tax-deductible. You will be emailed a receipt.

We welcome new members to the HSP community!

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