Invitation to participate
A researcher at the University of South Australia is investigating the support needs of parents caring for a child with a rare disease.
You are invited to complete this survey if:
• You are a parent (mother or father) of a child aged 18 years or younger, with a rare disease, and living at home.
• Your child has either recieved a dagnosis of a rare disease, or is suspected of having a rare disease but is not yet formally diagnosed.
Take the survey (20-25 mins to complete). The study runs until July.
